The views expressed on this website are solely
those of the Council for Responsible Genetics and do not necessarily
reflect the views of Working Group members or other collaborating
Philip L. Bereano, JD
is Professor of Technology and Public Policy at the University of
Washington. He is also a member of the National Board of Directors
and Chairman of the Committee on Databases and Liberties for the
American Civil Liberties Union (ACLU).
Liberty, and the Pursuit of Genetic Testing," (with Richard
Sclove), Washington Post, March 22, 1998.
Take Liberties with Our Genes," Seattle Times, July 17,
Paul R. Billings, MD, PhD
is Chair of the Board of Directors of CRG and Vice President for
Life Science and Clinical Affairs at Wipro Health Sciences, a provider
of information technology to the health care and life science industries.
From Genetic Discrimination, Genetics in Medicine, July
/ August 2000.
Individual, Family, and Societal Dimensions of Genetic Discrimination:
a Case Study Analysis, (with five others) Science and Engineering
as a Consequence of Genetic Testing, (with five others)
American Journal of Human Genetics, 1992, 50:476-482
Sujatha Byravan, PhD
is Executive Director of CRG. She is a biologist by training and
has worked as a science writer, a freelance journalist, and as Director
of the Fellows Program at Leadership for Environment and Development
Alissa L. Johnson, MA
is a Policy Associate with the Genetic Technologies Project at the
National Conference of State Legislatures (NCSL), where she provides
state legislators and their staff with objective, comprehensive
and scholarly information to facilitate the drafting of sound genetics
and Health Insurance, Genetics Brief, June 2002.
Privacy," Genetics Brief, June 2002.
Michael S. Yesley, JD is a
lawyer, former Director of the U.S. Department of Energy's Program
on the Ethical, Legal and Social Implications (ELSI) of the Human
Genome Project and Staff Director of the National Commission for
the Protection of Human Subjects at the National Institutes of Health.
Genetic Difference, 13 Berkeley Technology Law Journal
653, Spring 1998.
of Genetic Discrimination Should Be Fine-Tuned, GeneLetter,
March 1, 2001.
Colin J. Zick, JD
is a member of Foley Hoag LLPs Health Care and Litigation
practice groups. He provides advice on a variety of health care
matters, including Health Insurance Portability and Accountability
Act compliance, patient confidentiality and related matters to clients
throughout the United States.
HIPAA: New Federal Privacy Rules and their Implications,
(with Nick Littlefield) Boston Bar Journal, September/October 2002.
The Continuing Dilemma of Compliance with Requests for Health
Information, Boston Bar Journal, May/June 1999.