WORKING GROUP

The views expressed on this website are solely those of the Council for Responsible Genetics and do not necessarily reflect the views of Working Group members or other collaborating institutions.

Philip L. Bereano, JD is Professor of Technology and Public Policy at the University of Washington. He is also a member of the National Board of Directors and Chairman of the Committee on Databases and Liberties for the American Civil Liberties Union (ACLU).

"Life, Liberty, and the Pursuit of Genetic Testing," (with Richard Sclove), Washington Post, March 22, 1998.

"Don't Take Liberties with Our Genes," Seattle Times, July 17, 1997.

Paul R. Billings, MD, PhD is Chair of the Board of Directors of CRG and Vice President for Life Science and Clinical Affairs at Wipro Health Sciences, a provider of information technology to the health care and life science industries.

Lessons From Genetic Discrimination,” Genetics in Medicine, July / August 2000.

“Individual, Family, and Societal Dimensions of Genetic Discrimination: a Case Study Analysis,” (with five others) Science and Engineering Ethics 1996;2:71-88.

Discrimination as a Consequence of Genetic Testing,” (with five others) American Journal of Human Genetics, 1992, 50:476-482

Sujatha Byravan, PhD is Executive Director of CRG. She is a biologist by training and has worked as a science writer, a freelance journalist, and as Director of the Fellows Program at Leadership for Environment and Development (LEAD) International.

Alissa L. Johnson, MA is a Policy Associate with the Genetic Technologies Project at the National Conference of State Legislatures (NCSL), where she provides state legislators and their staff with objective, comprehensive and scholarly information to facilitate the drafting of sound genetics legislation.

Genetics and Health Insurance,” Genetics Brief, June 2002.

"Genetic Privacy," Genetics Brief, June 2002.

Michael S. Yesley, JD is a lawyer, former Director of the U.S. Department of Energy's Program on the Ethical, Legal and Social Implications (ELSI) of the Human Genome Project and Staff Director of the National Commission for the Protection of Human Subjects at the National Institutes of Health.

Protecting Genetic Difference,” 13 Berkeley Technology Law Journal 653, Spring 1998.

Prohibitions of Genetic Discrimination Should Be Fine-Tuned,” GeneLetter, March 1, 2001.

Colin J. Zick, JD is a member of Foley Hoag LLP’s Health Care and Litigation practice groups. He provides advice on a variety of health care matters, including Health Insurance Portability and Accountability Act compliance, patient confidentiality and related matters to clients throughout the United States.

“HIPAA: New Federal Privacy Rules and their Implications,” (with Nick Littlefield) Boston Bar Journal, September/October 2002.

“The Continuing Dilemma of Compliance with Requests for Health Information,” Boston Bar Journal, May/June 1999.




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