PRIVACY AND CONFIDENTIALITY
Every day, millions of Americans
have their medical information exchanged electronically between
hospitals, doctors, insurance companies, employers, and marketing
firms. While advances in information technology have the potential
to improve health care delivery by reducing costs and increasing
the efficiency of health transactions, they also have raised the
potential for misuse of and unwarranted access to sensitive medical
data distributed through the Internet.
Over the last decade, legislators have introduced
a range of policies at the to safeguard genetic and medical privacy.
A combination of the federal Health Insurance Portability and Accountability
Act and laws in twenty-nine states now provides indirect protection
for the privacy of genetic information. However, the United States
continues to lack a coherent approach to the appropriate handling
and use of genetic data. This site provides a comprehensive review
of legislation and court decisions in the area of genetic privacy.
Articles, Reviews and Reports
Genetic Testing, Discrimination and Privacy Program